We are building a platform for facilitating access to and sharing of human genomic data. Our platform includes features for discovery of available data, making your data visible to the research community, managing your data sources and initiating data collaborations. Our platform also integrates methods for secure data sharing and a patented mechanism for secure privacy-preserving data access.
No, we do not hold a repository for raw data. We provide the entry point for you to:
No. You cannot download or view medical records via Repositive. We only provide access to anonymised genomic data with limited clinical and phenotypic information. Please note that the access to these datasets is determined by the consent for use given by the data donors.
Our mission is to enable as much access to data as possible without compromising patient confidentiality or data security. Our approach for doing this is twofold:
The social enterprise Repositive spun out of the charity DNAdigest to develop a platform for facilitating access to and enabling sharing of genomic data. Repositive was founded by Fiona Nielsen (the founder of DNAdigest) in order to build a sustainable business around a software platform that provides both the technical means and the cultural incentives for genomic data sharing for research.
Repositive was incorporated as a commercial company with a strong social mission, to align our activities with the mission of DNAdigest.
In order to make our platform for data sharing sustainable, we are building on a business model of freemium subscriptions. That means that we can provide free access for all registered users to our basic services. For high-intensity users, advanced features and organisational access, we charge a subscription fee. We are operating a for-profit business model with our social mission strongly cemented in both our articles and our shareholders agreement.
Our mission and vision for Repositive are protected by our articles of association and our shareholders agreement to continue to support our declared purpose of developing and maintaining initiatives that enable efficient and ethical data sharing.
No, we will not solve all your research problems or enable access to all the data in the World. What we will do is to provide a simple but very powerful interface to address specific research needs. Data sharing in genetics is a complex problem and we strongly believe that different parts of the problem will require different solutions - there is no "one size fits all" solution. Join the events and hack days of DNAdigest to contribute to the development of new solutions.
Get in touch and we will be happy to answer. You can email us at firstname.lastname@example.org